 New this month!
Email: Nov13@mswebpals.org
Name: Benny
Gender: Female
Age: 45
Lives in: Colorado, USA
Years with MS: 2
I found out that I had MS in 2006 and since then I've been on a crazy ride. I
used to ride my Harleys and owned my own shops (tattoo and stained glass). Now
I can't do some of the things I loved so much. Thank god for my other half and
my great danes. They help keep me going. Most of the time I feel like I'm on
the outside looking at myself wondering who I am and what next. I'm just trying
to do the best I can. A aren't we all?
Added 16 November 2008
Email: Nov12@mswebpals.org
Name: Kellie
Gender: Female
Age: 28
Lives in: New York, USA
Years with MS: 5
My husband left me and my four-year-old about a year ago when I was pregnant
because he couldn't handle me being sick. He was my high school sweetheart. He
comes to see the children and has since got a new girlfriend who he says is me
'but she can walk and isn't dying'. I say I'm OK with my MS but I'm really not.
I have relapsing remitting MS and it's been very aggressive. I've had 14
infusions in four years and use a walker. I can't carry my son. It hurts that
MS has robbed me of so much.
Added 16 November 2008
Email: Nov11@mswebpals.org
Name: Matthew
Gender: Male
Age: 44
Lives in: Marske by the sea, Cleveland, UK
Years with MS: 3
Hi, I was diagnosed with primary progressive MS last year. I'd had symptoms for
about three years. I was a pretty active person so it's had quite an impact. I
used to do skiing, kite boarding, windsurfing, motorcycling, etc. Now I
struggle with the housework. I'd love to meet up with any other people that
live near me to chat and maybe arrange days out.
Added 16 November 2008
Email: Nov10@mswebpals.org
Name: Linda
Gender: Female
Age: 44
Lives in: South Africa
Years with MS: 14
I'm married with three children aged 24, 23 and 11. I was diagnosed in 1994
while having terrible headaches.The MS has been in remission all the years from
1994, although I got symptoms like I'm always tired. I heard that I have MS,
accepted it and go on with my life. Only my nearest family know that I have MS.
I'm still working. I'd like to have friends with MS because nobody at home
really understands how I'm feeling.
Added 16 November 2008
Email: Nov9@mswebpals.org
Name: Jasmine
Gender: Female
Age: 21
Lives in: Atlanta, Georgia, USA
Years with MS: Recently diagnosed
I'm looking for friends in my age bracket that still have fun and are living
with MS.
Added 16 November 2008
Email: Nov8@mswebpals.org
Name: Lisa
Gender: Female
Age: 54
Lives in: Orlando, Florida, USA
Years with MS: 32
I've just moved from Tallahassee where I was the support group leader for many
years. I use a scooter to get around. I need to meet people here. I look
forward to meeting new friends here in Jooly's Joint and also here in Orlando.
Added 16 November 2008
Email: Nov7@mswebpals.org
Name: John
Gender: Male
Age: 57
Lives in: Huntingdon, UK
Years with MS: 23
Hi, I've lived with MS a long time now, but still going. After my last attack
things have got a bit worse. I use a wheelchair about the home and use a buggy
to get out. I try to stay positive but it's hard at times. I'm a football fan,
only watching it on TV these days. If anybody out there would like to chat
about MS, football or anything else and fancy dropping me a line then it would
be great to hear from you.
Added 16 November 2008
Email: Nov6@mswebpals.org
Name: Michael
Gender: Male
Age: 32
Lives in: Sydney, Australia
Years with MS: 4+
I have primary progressive MS but it's stable. My doctor says it's now
relapsing progressive. I was very active before but I'm a wheelchair user now.
I still smile and laugh. To keep my mind active I'm writing a story about when
my wife and I first met which was when we were eight years old, and how we
found each other again when we had grown up. I have made four webpals thanks to
Jooly's Joint and would like to meet more so drop me a line if you'd like to
chat.
Added 16 November 2008
Email: Nov5@mswebpals.org
Name: Saz
Gender: Female
Age: 34
Lives in: Cornwall, UK
Years with MS: 4
I have relapsing remmiting MS and have had quite a few relapses so I'm going on
either Copaxone or Tysabri as Rebif didn't help. I'm very confused and don't
know which one to go for. My brain is not working too good any more.
Added 15 November 2008
Email: Nov4@mswebpals.org
Name: Stephen
Gender: Male
Age: 51
Lives in: Manchester, England, UK
Years with MS: 9
I'm divorced and have two teenage children. I enjoy most music and using the
PC. I have a car and like drives in the country and to the west coast of Wales.
I can walk with the aid of crutches. I like films, especially Sci-Fi. I enjoy
TV programmes such as Have I Got News For You and Bremner, Bird & Fortune.
I have an excellent sense of humour.
Added 15 November 2008
Email: Nov3@mswebpals.org
Name: Chris
Gender: Male
Age: 32
Lives in: East Yorkshire, UK
Years with MS: 4
Hi all, I was diagnosed four years ago. Over that time I've had to slow down a
little. I have given up a very physical job. I now sit at a desk all day (which
has not done anything for my waistline!).
Added 15 November 2008
Email: Nov2@mswebpals.org
Name: Suzanne
Gender: Female
Age: 40
Lives in: Norfolk, UK
Years with MS: 13
Hi, I have relapsing remitting MS. It started with optic neuritis 13 years ago
but was only diagnosed nine years ago. I've only had three major relapses since
then. I'm not on any drugs at the moment. I'm married with a 4-year-old son.
Added 2 November 2008
Email: Nov1@mswebpals.org
Name: Pauline
Gender: Female
Age: 57
Lives in: UK
Years with MS: 19
I have secondary progressive MS and Epilepsy. I've had MS for 19 years and
epilepsy for 15 years. I have a loving and caring husband who is also my
full-time carer. I have three grown up childen and seven grandchildren.
Added 2 November 2008
New last month!
Email: Oct45@mswebpals.org
Name: Lonni
Gender: Female
Age: 58
Lives in: Wisconsin, USA
Years with MS: 7 definite, symptoms much longer
I'm transitioning to being on Disability. It's a bit of a blow to my ego after
working for 40+ years, but it sure makes for an easier time of it! I love my
son and daughter-in-law, cold weather, TV, reading (when I can hang on to a
book and my eyes don't go nutsy) and all animals, especially dogs (I have a
couple of little fuzzy friends). I love to laugh! I'd love to hear from anyone
in the same boat!
Added 30 October 2008
Email: Oct44@mwebpals.org
Name: Tasha
Gender: Female
Age: 37
Lives in: USA
Years with MS: Just diagnosed
I was just diagnosed with optic neuritis. I had an MRI and it indicated MS,
although the doctors will not officially label it MS until I have a second
attack - but hey, I still get the pleasures of fatigue and blurry vision. I'm
still learning about MS since it was just dropped in my lap. I take life as it
comes -- leave the drama at the door is my general position. But I think
venting can be cathartic and is important for sanity. MS, I know, will
complicate my life and I want to know all I can to be prepared. If you are out
there and want to clue me in on life with MS, I'd appreciate it. I'm always
interested in meeting new people and learning how they see the world.
Added 30 October 2008
Email: Oct43@mswebpals.org
Name: Pat
Gender: Female
Age: 56
Lives in: Florida, USA
Years with MS: 3
I use a cane most of the time and a scooter for longer distances. I'm married,
have a 19-year-old son and a black and tan dachshund. I love dachshunds and
reading. I volunteer with the MS society when I can and do advocacy online. I
love the mountains and we vacation in North Georgia frequently. We have a RV
and hope to do more traveling when my husband retires in 2010.
Added 30 October 2008
Email: Oct42@mswebpals.org
Name: Lisa
Gender: Female
Age: 35
Lives in: Redcar, UK
Years with MS: 12
I've had relapsing remitting MS for nearly 13 yrs now. I was on Rebif for about
10 years. Unfortunatly I came off it recently as it stopped working as it
should. I'm thinking about starting mitoxantrone. I'd love to hear from anyone
who just wants friendship. I find it easier to talk to people who know what
you're going through.
Added 30 October 2008
Email: Oct41@mswebpals.org
Name: Kelly
Gender: Female
Age: 41
Lives in: Colorado, USA
Years with MS: 2
I started having symptoms three years ago and I just knew it was MS. I also
have epilepsy. I really don't get any emotional support at home. My husband is
very active and so are my kids, they all ride dirt bikes (even my 4-year-old).
My husband believes in mind over matter (if you don't mind it doesn't matter).
Well I do mind. I used to ride also, but now I can't. In fact, MS makes it hard
to do anything. I'm having trouble finding a job and our house is up for sale
because I'm not working. Some days I get so depressed I can't even think.
Added 30 October 2008
Email: Oct40@mswebpals.org
Name: Des
Gender: Male
Age: 51
Lives in: Scotland, UK
Years with MS: 10
Hello, I was diagnosed about nine years ago although the symptoms were there
before. I have three children. I'm a big fan of Bob Dylan and the Beatles
(hardly needed to give my age). I like watching football on TV and most sports.
I work full-time in the IT business. I would not recommend MS to anyone
planning on getting a new disease. When I was first diagnosed they said it was
relapsing remitting but I'm still waiting for my first remission. It's probably
secondary progressive. I get around by myself but not too fast. It would be
nice to have a chat.
Added 30 October 2008
Email: Oct39@mswebpals.org
Name: Wheeled Warrior
Gender: Female
Age: 46
Lives in: Lincoln, UK
Years with MS: 14
I was diagnosed in 1995. I have primary progressive MS and have been in a
wheelchair completely for three years now. I've been married 29 years. We have
four children, seven grandchildren and twins due in January. I'm always on my
computer. I think it keeps my brains active. Try some of the brain games like
Jewel Quest, it's good for hand/eye co-ordination as well.
Added 30 October 2008
Email: Oct38@mswebpals.org
Name: Faith
Gender: Female
Age: 37
Lives in: Leicester, UK
Years with MS: Just diagnosed
I have just come out of hospital after experiencing numbness and pains down my
left side. I have just been diagnosed with MS after a scan. I had to have
steroids. It's a huge shock and I would like to speak to others who are going
through the same things. Somehow you think it's just you. I have a wonderful
partner and two lurchers. My hobbies are quilting and art. I'm just trying to
take each day as it comes and get my head round it all. I'm still in shock.
Added 30 October 2008
Email: Oct37@mswebpals.org
Name: Jersey Girl
Gender: Female
Age: 40
Lives in: Jersey, Channel Islands, UK
Years with MS: 2
Hi. I have aggressive relapsing remitting MS which I've apparently had for
approx 20 years but diagnosed only two years ago. I'm single with a 10-year-old
daughter. I was made redundant not long after diagnosis. I started Tysabri 10
months ago which has stopped me having relapses. I also get fatigue but have
B12 injections. I have weakness in both legs and get around with a walking
stick and sometimes holding my daughters hand! I still have a good sense of
humour and often laugh at myself too. Hope to hear from you soon.
Added 30 October 2008
Email: Oct36@mswebpals.org
Name: Chantal
Gender: Female
Age: 26
Lives in: London, UK
Years with MS: 2
Hi, I was diagnosed just after I graduated from university. I had numb feet at
first and then it went up to my legs, chest, arms and hands. The symptoms
stopped totally after six months and it took a long time for the doctors to
finally send me to the hospital where I got diagnosed after an MRI scan. I'm
French and moved to Edinburgh 5 years ago to study design and learn English. I
moved to London after graduation and diagnosis to become a designer. I'm
usually strong, bubbly and very active but lately MS and fatigue makes all this
a bit harder.
Added 30 October 2008
Email: Oct35@mswebpals.org
Name: Kathy
Gender: Female
Age: 58
Lives in: Farnborough, Hampshire, UK
Years with MS: 1
I've been diagnosed with primary progressive MS this year but on reflection
have had this for some time without realizing what it was. The falling over,
the back pain and heavy awkward leg movement. I still don't understand
everything about this but time is a great education (I hope). I haven't worked
for a year but now I know what's wrong I hope to be able to find something to
concentrate on rather than just this.
Added 30 October 2008
Email: Oct34@mswebpals.org
Name: Duane
Gender: Male
Age: 35
Lives in: Michigan, USA
Years with MS: 7 (but was told I've probably had MS for 17 years)
I'm a devout Christian and my faith in God has really helped me through the
difficulties I have with MS. I have relapsing remitting MS. My most bothersome
symptoms are fatigue, migraines, numbness and short-term memory loss. I
thoroughly enjoy reading and recently finished writing a book of religious
poetry. I'd like to find a friend who I can chat with.
Added 30 October 2008
Email: Oct33@mswebpals.org
Name: Michelle
Gender: Female
Age: 39
Lives in: Kingscliffe, nr Peterborough, UK
Years with MS: 8
I was dignosed with relapsing remitting MS in 2000. I had various symptoms but
was shocked with the result. I had a very bad relapse in 2001 and have since
recovered well. I walk but not far and use a scooter when out and about. I have
three girls whom I adore. They keep me busy. I'm easy going and chatty. I try
to keep positive and stay healthy and happy.
Added 30 October 2008
Email: Oct32@mswebpals.org
Name: Michelle
Gender: Female
Age: 35
Lives in: Virginia, USA
Years with MS: Since 2001
I love NASCAR! Dale Jr. is the man. I love pets and have three dogs. I have
primary progressive MS. I don't go out in the heat or sun. Central air rules. I
moved to Virginia from New York in 1997. I miss my friends, but they do come
visit when they can. I don't miss NY. I hope to talk to people with MS and to
be able to comfort each other and share information.
Added 30 October 2008
Email: Oct31@mswebpals.org
Name: Jayne
Gender: Female
Age: 48
Lives in: South Carolina, USA
Years with MS: 13
I was diagnoised with relapsing remitting MS in 1995. I remember having
problems even further back than that. I love life and enjoy one day at a time.
I love spending time listening to music and watching new movies. I ride my
stationary bicycle for exercise. I try to ride three times a week. This week I
keep putting it off. The heat in SC is too hot for us MSers. Look forward to
hearing from you
Added 29 October 2008
Email: Oct30@mswebpals.org
Name: Harold
Gender: Male
Age: 56
Lives in: Guisborough, Cleveland, UK
Years with MS: 6
Hi out there in the world of MS. Six years ago I was told, "Oi, you have
MS". I was working in a supermarket as a butcher and I could still do all
the things I liked to do. I had to stop work in 2004. In 2005 I was told my MS
is now chronic progressive - MS moves so fast. I now spend 24/7 in an
indoor/outdoor chair. I have lost the use of both legs and my left arm but I'm
still a happy man with a good wife and daughter who both help me a lot. So if
you like to email please do.
Added 29 October 2008
Email: Oct29@mswebpals.org
Name: Jacqueline
Gender: Female
Age: 35
Lives in: Cambridgeshire, UK
Years with MS: 1
Hi, I'm Jac. I've only been diagnosed with relapsing remitting MS for a year.
It's been a hard year, but I'm finally coming to terms with MS. It's not gonna
stop me enjoying my life! I live with my partner and son and our three gorgeous
dogs (two boxers and a rough collie). I spend a lot of time of my computer
chatting! Anything else ya wanna know, just ask.
Added 29 October 2008
Email: Oct28@mswebpals.org
Name: Kim
Gender: Female
Age: 50
Lives in: Huntingdon, Cambridgeshire, UK
Years with MS: 15
Hello there! I moved to Huntingdon three years ago after eight years in the
Shetland Isles. A bit of a culture shock! Silly me, I met someone online
dating. We married after six weeks and it lasted only five weeks. I live with
my 16-year-old son in an adapted bungalow. I also have kids aged 25, 27 and 28
and seven grandchildren. I'm well travelled and have studied courses in
counselling skills, reiki, art and design and computer at the Open University.
I climbed the Cuillin years ago whilst living for six years on Skye. I lived in
New Zealand for 10 years (my parents still live there). I enjoy art, growing
herbs for Italian cooking, reading, and keeping healthy with my MS alternative
therapies including acupuncture, kinesiology and meditation. I have some
penfriends abroad, some of whom I've met over the years. Feel free to drop me a
line, all messages will be answered.
Added 29 October 2008
Email: Oct27@mswebpals.org
Name: Isobel
Gender: Female
Age: 39
Lives in: Paignton, UK
Years with MS: 10
I'm a bit lost. Perhaps this will be different. I refuse to agree with all that
twee stuff about being positive about everything and 'don't let MS rule your
life'. It does. It has stopped me doing things I liked to do when I was
able-bodied so it does restrict my life. Nobody looks at you when you are in a
wheelchair or they look at you and assume you are thick. Nnd my cat is being
really naughty. I shout at her but she just stares at me with that dismissive
look that cats are so good at. And I thought global warming meant we would have
a lot of sunny days. Did I get something wrong?
Added 29 October 2008
Email: Oct26@mswebpals.org
Name: Nikki
Gender: Female
Age: 45
Lives in: Idaho, USA
Years with MS: 16
Hi, I've been married for a blue forever have one organic homebuilt kid who is
16 and my daughter who is 7. My family is very outdoorsy, we all ski,
snowboard, fish at the lake. Though I'd like to do the same things I work out
at the gym and stay indoors. I'd love to meet some friends who get my story
about my little problem. Man I hate this mess! But since it is a card I was
dealt when I was just 20-something I'm determined to be positive!
Added 29 October 2008
Email: Oct25@mswebpals.org
Name: Ray
Gender: Male
Age: 55
Lives in: Hooksett, New Hampshire, USA
Years with MS: 10
Single guy. Animal lover. Diagnosed in 1999 with relapsing remitting MS.
Currently working part-time, self-employed in real estate. Meds include
Copaxone, Baclofen, Klonopin and lots of Excedrin. I was very active and played
all sports, but am now a couch potato. I'm still able to get around most days,
but need a cane to maintain balance on occasion. Currently living in the cold
and wet northeast. Would like to relocate to a warmer climate in the next year
or so. Any ideas ?
Added 29 October 2008
Email: Oct24@mswebpals.org
Name: Colette
Gender: Female
Age: 33
Lives in: Wales, UK
Years with MS: Diagnosed 14 months, lived with it 5 years
I've got three children, a girl and two boys. I'm married a second time. The MS
is in my both legs. I can't feel nothing. I walk with a stick, but can't walk
very far. I often use a scooter when I go out shopping. It makes life easier. I
like to go Spain on holiday. I went to the Costa Del Sol. It was brill. I love
spending time with my children on weekends and in the evenings. One of my
favorite things is to take them to the cinema and relax enjoying a film and a
bag of sweets.
Added 29 October 2008
Email: Oct23@mswebpals.org
Name: Jacky
Gender: Female
Age: 49
Lives in: Kent, UK
Years with MS: 20
I was diagnosed with MS in 1992 after five years of going through the hoops. I
had relapsing and remitting MS. Now I have secondary progressive. I still have
a lot of relapses though. Even my neurologist can't work me out. I have three
grown up children. My husband is my carer. I'm a full-time wheelchair user. I
like the soaps on TV and reading [fiction]. I'm a practising Christian. I like
making friends and contacting people via email. Having lived so long with MS I
feel I know a lot about it and like helping others out. I belong to an MS
group.
Added 29 October 2008
Email: Oct22@mswebpals.org
Name: Phixxy
Gender: Female
Age: 26
Lives in: Drammen, Norway
Years with MS: 2 months
I have always been a live-each-day-as-it-comes person. I got divorced two years
ago and within three days ran off with rock band for six months (this is how I
deal with things, not with great maturity, ha ha!). Six weeks ago I went to
work at 8am and by 6pm was completley blind in my right eye. Tests were done
and nothing about MS was mentioned so I was not prepared for that at all. When
I went back to the hospital two days ago for my second MRI scan and LB results
the diagnosis was clear. Today I started MT injections. To be honest I am
terrified of just how to process this information. Is there anyone out there
that could help a little? I don't think I'm dealing with this well. I'm very
much in denial. Ignorance is bliss!
Added 29 October 2008
Email: Oct21@mswebpals.org
Name: Gary
Gender: Male
Age: 62
Lives in: Georgetown, Kentucky, USA
Years with MS: 25+
I'm a grandfather with 3 little grandkids. I'm a retired elementary school
principal. I love to read, cook, and spend fun times with my family. I use a
Segway with a seat to get around. Great fun. I would like to make some new
friends.
Added 29 October 2008
Email: Oct20@mswebpals.org
Name: Chantal
Gender: Female
Age: 26
Lives in: London, UK
Years with MS: 2
I'm French but have lived in Britain for more than five years now. I was
diagnosed two years ago after graduating. My symptoms were mainly numbness in
my hands and legs. I'm bubbly and always up for doing something with friends
and meeting more people. I have never met or spoken to anyone with MS and I
can't wait!!
Added 29 October 2008
Email: Oct19@mswebpals.org
Name: Rob
Gender: Male
Age: 53
Lives in: South Wales, UK
Years with MS: 12
Hi, I was diagnosed in 1996 with relaping remitting MS. The condition has now
progressed to primary progressive. I'm married with 20-year-old daughter. Since
finishing work in 2000, I keep myself busy with local MS branch committee work,
listening to music and using the computer a lot for email and Internet. I'd be
pleased to hear from anyone wishing to chat.
Added 29 October 2008
Email: Oct18@mswebpals.org
Name: Gwen
Gender: Female
Age: 51
Lives in: Brighton, UK
Years with MS: 1
i have relapsing remitting MS. It started with numbness and pins and needles in
my legs. My vision blurred and my right hand arm was very difficult to use. I
had MRI scans and a lumbar puncture and was diagnosed. I started Rebif
injections - I did them myself which is something I never thought I could do.
So hey, all those with MS, we can get tired we can get low but whatever happens
we can cope.
Added 29 October 2008
Email: Oct17@mswebpals.org
Name: Maureen
Gender: Female
Age: 46
Lives in: Leeds, UK
Years with MS: 9
I've had mainly sensory symptoms: double vision, numbness, pins & needles.
I have been on the Mitoxzantrone treatment. I now take Copaxone and it does
seem to have had a brilliant effect. I still work part-time as a nurse.
Sometimes my balance is a bit off and that's without a drink! I like to
cross-stitch and read. I've been married for 25 years, with four children aged
between 22 and nine, and three dogs. I'd like some new friends and will reply
to anyone.
Added 29 October 2008
Email: Oct16@mswebpals.org
Name: Tina
Gender: Female
Age: 43
Lives in: Panama City, Florida, USA
Years with MS: 1
I'd like to talk with people that have a understanding of what I'm going
through. I've been married for 20 years and have four kids and four grandkids.
Right now I'm on chemo and doing good. I like swinning, reading and playing
with my grandkids.
Added 29 October 2008
Email: Oct15@mswebpals.org
Name: Debbie
Gender: Female
Age: 38
Lives in: Kent, UK
Years with MS: 9
Lately I've had lots of relapses, the worst of which is the numbness and the
bad balance. I have lots of other symptoms too. I like to get out and about to
see things and really find it difficult when I can't walk around.
Added 29 October 2008
Email: Oct14@mswebpals.org
Name: Shandy
Gender: Female
Age: 42
Lives in: Ireland
Years with MS: 2
Hi, I'm a mum of two grown up kids. Married happily, I think, although
sometimes I feel he tries too hard to help me and I feel useless. I was made
redundant last year and now seem to do very little. I'm due to start Tysabri
soon having just come off Rebif. I'm a bit fed up but would love to hear from
anyone so please write.
Added 29 October 2008
Email: Oct13@mswebpals.org
Name: Amanda
Gender: Female
Age: 37
Lives in: Leicester, UK
Years with MS: Diagnosed April 2008
Hi, I was diagnosed with relapsing remitting MS this year. I was well shocked
but I have to carry on. Some days are better than others. I would like to chat
and make friends. I'm married with children. My family keeps me going. I was
quite active before. Now I don't really have any energy.
Added 29 October 2008
Email: Oct12@mswebpals.org
Name: Maria
Gender: Female
Age: 45
Lives in: Moscow, Russia
Years with MS: 2
I'm Argentinian and married to a French man who works in Moscow. I was
diagnosed in Houston, Texas after I began to experience TN which is my only
symptom today. I have three kids. I need help to accept MS and to say it. I'm
on Rebif and Lyrica. I do many things. I know I have to but I don't talk about
this very much. Maybe it's about time.
Added 29 October 2008
Email: Oct11@mswebpals.org
Name: Kathie
Gender: Female
Age: 59
Lives in: Connecticut, USA
Years with MS: 22
I've had chronic progressive MS for 22 years. I love to write and I answer
every email I get. I've made lots of friends at Jooly's Joint. I love animals
and have a dog and four cats. I have two adult children. I'd love to hear from
anyone.
Added 29 October 2008
Email: Oct10@mswebpals.org
Name: June
Gender: Female
Age: 30
Lives in: Northumberland, UK
Years with MS: 3, but have had symptoms for much longer.
Hi everyone. I'm looking to make new friends so get back to me. I look forward
to it.
Added 19 October 2008
Email: Oct9@mswebpals.org
Name: Carol
Gender: Female
Age: 45
Lives in: Paris, France
Years with MS: 5
I work as a dental nurse four days a week. I have two children ages 18 and 14.
I will not let MS be an obstacle in my life. I just get along. So far so
good.
Added 19 October 2008
Email: Oct8@mswebpals.org
Name: Flora
Gender: Female
Age: 48
Lives in: Sheffield, UK
Years with MS: Diagnosed April 22, 2008, but believe I've had MS 11 years
I'm married with girls aged 12 and 14. I'd like to return to the world of work,
but have had no takers! I have 'mild' MS and have problems with fatigue so am
now on Amantadine which helps. I'd like to talk to anyone with MS about
anything [a measure of my desperation!].
Added 19 October 2008
Email: Oct7@mswebpals.org
Name: Ronnie
Gender: Male
Age: 57
Lives in: Rockville, Maryland, USA
Years with MS: 17
I'm not new to MS. I like to think that I have MS; that MS does not have me,
but it's becoming increasingly harder to think and feel that way. I haven't
been able to work since 1996. The company from which I had been getting a
monthly Disability paycheck has since gone under and now I don't get that
check. Luckily, I do get some money from social security (or insecurity) but
it's nothing like it used to be.
Added 19 October 2008
Email: Oct6@mswebpals.org
Name: Ernie
Gender: Male
Age: 38
Lives in: Virginia, USA
Years with MS: 3
I'm learning to live with MS. It's hard to see the people I love (my wife) deal
with what it is doing to me.
Added 19 October 2008
Email: Oct5@mswebpals.org
Name: John
Gender: Male
Age: 58
Lives in: Peterborough, Canada
Years with MS: 15
My bladder's shot and I can't walk or even stand without help. If I'm not on
the toilet or in bed, I'm on my electric wheelchair. One arm doesn't work very
well at all. But hey, nobody has asked me to help them move recently, and I
don't have to shovel snow! My neurologist reported to my family doctor that I
was 'mildly euphoric', which I looked up. It means 'happy for no apparent
reason'. Right on Doc, I don't know why either. Love to hear from anybody,
especially foreign [to me] countries.
Added 19 October 2008
Email: Oct4@mswebpals.org
Name: MrskeLLi
Gender: Female
Age: 39
Lives in: USA
Years with MS: 2
I'm a married mother of four and two step-children. I've been married 14 years.
It's been a rocky road for me. I can recall back as far as 2001 having pain,
numbness and lots of anxiety attacks. After an MRI my doctor told me that I
have MS. My head went spinning. It was shocking and I wanted to scream and
started to think about the people I know who have MS. Are they living? Will I
be able to walk? Will I be able to talk? Am I going to die?! I'm looking
forward to sharing more.
Added 19 October 2008
Email: Oct3@mswebpals.org
Name: John
Gender: Male
Age: 63
Lives in: Ipswich, UK
Years with MS: Diagnosed 1980, symptoms since 1967
I still walk, but have numb hands, numb feet, poor balance, weakness, cognitive
problems and fatigue. I used to race motorcycles and cars, and did
parascending, free fall parachuting, climbing and canoeing. I still swim and
train at home in my gym. I like to go fishing, and am still involved in
motorcycle racing. I've been married for 42 years and have two daughters, six
grandchildren and a dog. I also have Hughes Syndrome which is currently being
treated, and some of my MS problems are reducing. I hope you may find my
ramblings interesting and if you would like to chat please feel free to make
contact anytime.
Added 19 October 2008
Email: Oct2@mswebpals.org
Name: Marianne
Gender: Female
Age: 39
Lives in: Australia
Years with MS: 18
I only started using a stick when I broke my ankle two years ago. I have no-one
to talk to, only my family. I'm interested in reading and archaeology.
Added 11 October 2008
Email: Oct1@mswebpals.org
Name: Steph
Gender: Female
Age: 25
Lives in: Wales, UK
Years with MS: 1
Hi, I was diagnosed in January. It came as a bit of a shock. Anyone who is
recently diagnosed, or wants to talk about their feelings or symptoms or is
just fed up, feel free to email me or chat in the chat room.
Added 11 October 2008
New two months ago!
Email: Jun11@mswebpals.org
Name: Heather
Gender: Female
Age: 53
Lives in: Auckland, New Zealand
Years with MS: 12
I have relapsing/progressive MS and I think it's probably the best thing that's
ever happened to me. See I live on my own so I have to look after myself - no
one else is available. No seriously, I have found an inner strength I would
never have known was there. I still work full-time, someone's gotta pay the
bills. I try to go to the gym three times a week, more for the company than
exercise but I also find the gentle exercises are helping, like walking on the
treadmill. My legs almost feel detached sometimes but always very heavy. I can
get around without my crutches as long as I have a wall to bounce off. I'd love
to chat to anyone and everyone, so please take a chance and write to me, we've
already got so much in common.
Added 15 June 2008
Email: Jun10@mswebpals.org
Name: Bryony
Gender: Female
Age: 25
Lives in: Portland, Oregon, USA
Years with MS: 9
Hello, I'm trying to reach out, dealing with my first major exacerbation. I'm
changing my life and trying to get over all the crap that is going on. Anywho,
I'm always up for chat and friends. I just moved to the Portland area so I
don't have many!
Added 15 June 2008
Email: Jun9@mswebpals.org
Name: Nelkap4
Gender: Male
Age: 53
Lives in: Florida, USA
Years with MS: 22
I was diagnosed in 1986. I use scooter when going out and a wheelchair and
walker at home. I divorced in 1994 and have two daughters (ages 30 and 24) and
a son (27). I also have a grandchild. I love being on the computer and like
music especially Elton John.
Added 15 June 2008
Email: Jun8@mswebpals.org
Name: MW
Age: 32
Lives in: Australia
Years with MS: 3
I have primary progressive MS and use a wheelchair. I used to see two of things
but not now. I've just given blood as a part of a study into PPMS to try to
find meds to help and they will keep me informed on the findings. Anyone
wanting to chat on anything at all should email me.
Added 15 June 2008
Email: Jun7@mswebpals.org
Name: Gwen
Gender: Female
Age: 51
Lives in: Brighton, UK
Years with MS: 8 months
I have relapsing relapsing MS. I think I've had it for a while but never
realised. I've had numbness, pins and needles, loss of balance and blurred
vision. I had two MRIs, a lumbar puncture, blood tests and a brain scan and was
diagnosed.
Added 15 June 2008
Email: Jun6@mswebpals.org
Name: Anne
Gender: Female
Age: 49+
Lives in: England, UK
Years with MS: Diagnosed 1995
I have secondary progressive MS and quadriplegia. I use voice-activated
software and have mastered it at last! I'm very fortunate inasmuch as my
husband remains, my family is very supportive, I have direct payments and five
good carers. I'm in the process of writing my autobiography. I spent seven
years in Saudi Arabia and six in Malaysia.
Added 15 June 2008
Email: Jun5@mswebpals.org
Name: Zuzana
Gender: Female
Age: 27
Lives in: London, UK
Years with MS: Recently diagnosed
Hi, I was diagnosed three weeks ago. I'm still finding it hard to come to terms
with it. Does anyone have any advice how to cope?
Added 15 June 2008
Email: Jun4@mswebpals.org
Name: Liban
Age: 28
Lives in: London, UK
Years with MS: 4
I was diagnosed with primary progressive MS in 2008 but had had nine out of ten
of the symptoms since 2004. I graduated from university and planned to live my
life.Then suddenly overnight I developed double vision, poor balance and
slurred speech! Now I can't work but the relief of now knowing what caused all
of this makes it easier to sleep at night. I have a darling six month daughter
who is a joy but the fatigue that we have to endure every second makes it so
hard to enjoy simply playing with her. I pray for all of us that the will be a
cure.
Added 15 June 2008
Email: Jun3@mswebpals.org
Name: Spencer
Gender: Male
Age: 46
Lives in: Rotherham, UK
Years with MS: 5
I just wanna meet friends.
Added 15 June 2008
Email: Jun2@mswebpals.org
Name: Nicolette
Gender: Female
Age: 41
Lives in: Essex, UK
Years with MS: 10
I'm a happy person. I like chatting to people and eating out. I walk with a
rolator or elbow crutches. I enjoy shopping, daily exercise and weekly massage.
I was a Civil Servant until I was medically retired nine years ago (three hours
a day commuting to Westminster in London was a killer). I couldn't cope with
main line trains or the underground either which is a shame (it's the stairs).
I enjoy the theatre and have seen two shows recently (one rubbish, one very
good). One of the advantages of the mobility part of DLA is that I can go by
taxi - less stress and not so tiring.
Added 15 June 2008
Email: Jun1@mswebpals.org
Name: Katie
Gender: Female
Age: 46
Lives in: Scotland, UK
Years with MS: Diagnosed May 2008
Hi, I was diagnosed with MS just 2 weeks ago and am just getting my head around
it all! I've had bilateral sixth nerve palsy of my eyes for four months now and
dont know terribly much about it. I'm trying to remain positive. I'm nurse and
hoping to be back at work pretty soon! I'd love to hear from anyone who could
give me some advice or just to chat to because I'm sure you all know what it
feels like! There doesn't appear to be a lot of aftercare or service provision
in my area. I'm really disappointed but will tackle that one later! Jooly's
Joint is an inspiration - I came across it by accident when I was looking for
some information!
Added 15 June 2008
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